Author Archives: tricialathrop

Where’s the Joy?

Posted on February 19, 2025 by tricialathrop

February 18

It’s been a rough few days. Norm continues to ride the roller coaster between going to die and going to live.

My plan was to take him home yesterday. Dr Cutrer said that it would be morally and medically unethical to send him home. BP still iffy, but his oxygen levels had dropped so much that there was no way to give him the oxygen he needed. And still, we wait for answers.

The question is what really is the cause…there are all kinds of fungus. Cultures still growing.

Norm’s brother and sister came, they helped to bolster his spirit, I think the pain meds helped to return Norm to his wisecracking self.I heard Norm laugh multiple times, and he was nice to the nurses.

I’ve decided to tell Norm that he is free to stop the fight. If he wants to live, which is what I want, he needs to do it for himself, not so that he’s not a disappointment. I don’t know if he heard me, but he is my hero….very supportive and encouraging for all my endeavors.

This writing was interrupted. Norm came back from his MRI, in pain (not from the MRI), and agitated. He kept saying over and over, “Oh Lord, you are my God, and I will ever praise you.”

He was in a lot of pain, his oxygen and BP levels were sinking. The nurses put a mask on him and told him to continue the chant, just in his head because talking caused his oxygen level to reduce.

I sang the song to him as he tried to focus on breathing. Song after song, but the oxygen level stayed too low. The nurses looked very concerned.

Suddenly about ten people entered the room, in a rush and began to work with Norm. Dr Cutrer took us out into the hall and asked us what had happened. Then he spoke to one of the nurses. Norm would need to go to ICU and possibly get a breathing tube.

I spoke to Norm about the tube, he was concerned that it would be the rest of his life. I assured him only a few days, giving the doctors a few more days to find the treatment that would get rid of the fevers, and allow him to continue his cancer treatment.

They rushed him to ICU, where he got agitated again, he was confused and I wasn’t allowed in the room while they got him hooked up to monitors and a breathing apparatus…not an intubation.

They got him to be stable…but we still don’t know what is going to happen. It’s scary. Will he recover? Will we have another miracle? Or will he continue to decline? Here we are again, waiting to see what happens, waiting to know if there are any answers to his illness, waiting for whatever the Lord will do.

Where’s the joy? Another day when it is not so clear.

I am thankful for the care and concern shown by the nurses and doctors at each step of this journey.

I pray for a friend who is dealing with pneumonia, and had to be transferred to a hospital where she may have an operation.

I rejoice that God remains faithful, even when it seems he is not there.

The steadfast love of the Lord never ceases, his mercies never come to an end; they are new every morning; great is your faithfulness. Lamentations 3:22-23

I tried to load the song from Michael W Smith, “Step by Step”. Perhaps you can find it on YouTube.

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Where’s the Joy?

Posted on February 19, 2025 by tricialathrop

February 15

What a roller coaster!

I came this morning, all set to take Norm home. They can’t find the problem, he’s upset being in the hospital, he just wanted to go home.

Hospitalist said the bronchial biopsy revealed a fungus-unknown whether mold or yeast. Cultures would tell.

Norm’s BP dropped overnight. The doctors thought he might be in septic shock. If his BP didn’t go up, a trip to ICU for several days.

Norm is understandably frustrated. His anguish is apparent in his tears and wails. I promised him I would take him home Monday if they had not found anything. I said in the afternoon, he said 9 am.

Psych came to talk to him. They picked the right doctor, one who also had an engineering degree, fit very well with Norm’s mind. He summed up Norm’s issues. It helped Norm to speak of some of his fears. One big one, he doesn’t want me to have to deal with him as an invalid, like his grandmother who abused him.

Someone came from physical therapy and gave him a list of exercises to do. He’s in a better frame of mind. He feels that the staff is listening to him.

His brother and sister are coming in this week, they will also help with the attitude. It will be good for them to see him and show him support and love.

Right now I’m taking a breather from the emotional roller coaster ride, just some gentle hills before the climb and drop. No immediate threat of death, and his self-diagnosis of being an invalid debunked by physical therapy. He’s still strong, just no endurance.

I have renewed hope.

Where’s the joy?

I am thankful that two specialists were able to encourage Norm today.

I pray for wisdom for the doctors as they make decisions about Norm’s treatment moving forward.

I rejoice in these moments of reprieve when I can get a little rest.

Where’s the joy? Family and friends who support and encourage me.

Weeping may endure for the night, but joy comes in the morning. Psalm 30:5

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Where’s the Joy?

Posted on February 15, 2025 by tricialathrop

February 14

Valentine’s Day, Norm remains in the hospital.

It’s been a rough two days.

I’m dealing with anger, frustration, and despair as Norm seems to choose death. He told me that he is sorry that he can’t be the Hallmark hero who fights and wins against impossible odds.

Yesterday, I told Norm that I was angry at him. I said that it wasn’t the cancer that would kill him, but his refusal to eat. I was so frustrated as he talked about how malnourished he was, but still would not eat. We brought in foods he liked, foods he requested, but he would only take a bite or two and he was done.

After I yelled at him, he ate more…but today, not so much.

The frustration, he only had three more chemo treatments to go. He was doing so well until the fever hit…then he sank fast.

I knew being a care giver would be hard. I knew that the cancer was in an advanced stage when the doctors finally identified it. But I didn’t understand how difficult for Norm with the cancer and for me as a caregiver. This goes beyond all expectations.

I’m not proud of getting angry. How could a believer who trusts in the Lord get so upset when things go differently than expected?

How could I yell at Norm in his sick and weakened state?f

I had no idea it would be this difficult. If you are a caregiver, I hope you have a support group. This is not a path to walk alone. A caregiver is everything to an ill, elderly or disabled person. It takes its toll, mentally, physically, and spiritually.

I feel like I’m hovering over an abyss holding onto a frayed knot by a single strand.

Where’s the joy?

I am thankful for the times I have had and hope to have with the love of my life. Norm loves the Lord, his family and his friends and wants all to know that he’s not giving up.

I pray for the strength and courage to face what lies ahead. I pray for other caregivers who struggle to keep hope day after day. I pray for support when it is all just too much to bear.

I rejoice for the faithfulness of God revealed in the Scripture through broken and failing humans. Humans fail, God remains faithful.

Where’s the joy? Where indeed? Lord I believe, help my unbelief.

I’m going to share an article I wrote a few years ago. I think it fits what is happening. You can find the narrative in 1 Kings 18-19.

My husband Norm and I enjoyed a morning hike, astounded by the rock formations in Zion National Park. Tired and hungry, we rode the shuttle back to the hotel.

As we listened to peaceful music, we heard the whimpering whine of a weary tot. I looked at Norm, “Someone needs a nap.” Soon the whine became a wail, “I’m hungry!” 

The lady behind me whispered, “Someone needs a snack and a nap.”

The mother tried to distract him, but the boy continued to wail. 

Sometimes I feel like that kid. Even when the activity is for the Lord or one for fun, weariness hits and I begin to whine. “Why am I doing this? Who even cares?”

First Kings 19 relates the narrative of Elijah after his victory on Mt. Carmel. This prophet  proclaimed the Word of the Lord, performed wonderful miracles, took on 400 prophets of Baal, proved to all Israel that God alone was God.

Queen Jezebel threatened, “I’m going to kill Elijah.” 

Elijah fled in fear of his life. The man who called down the power of the Almighty God, trembled before a woman. He told the Lord he was done and ready to die.

God didn’t rebuke him. He provided a safe place where Elijah slept in peace. Angels brought food. God gave Elijah a snack and a nap.

 Sometimes we get busy doing things for the Lord…good things…great things.  But we are human and we grow weary. God knows we are just dust. We can trust him to provide for our needs without condemnation. He gives us a snack and a nap.

He gives strength to the weary, and to him who lacks might He increases power.

Though youths grow weary and tired, and vigorous young men stumble badly, yet those who wait for the Lord will gain new strength; They will mount up with wings like eagles, they will run and not get tired, they will walk and not become weary.

Isaiah 40:29–31 NASB.

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Where’s the Joy?

Posted on February 12, 2025 by tricialathrop

February 11

It has been a roller coaster kind of week. We waver between Norm behaving as if he will die in a few days, to great reports about what is happening with him.

He continues to have a fever with unknown origin…I guess not uncommon with chemo patients. They’ve ruled out a lot of things. Norm is not presenting symptoms to identify with any one thing. No headaches, no nausea, he just has overall body aches and weakness, along with the fever. But each day, the fever stays lower longer and doesn’t spike as high.

They’ve done multiple tests and scans. What we know, the cancer has not returned. The scans show that the chemo is wiping out the cancer. There is no longer any sign of it in the brain. We Thank God for that.

Norm is tired of fighting. He says that he is broken mentally, physically, and spiritually. This morning, before we got news from the doctors, he wanted to go home and die. He mourns the death of the man he was.

He always wants to know, so he can act. It’s been almost a week in the hospital, and still no answers. Well, a lot of answers as to what it is not, just not what it is.

He wants to come home, but he needs to be where he can get treated to get stronger. He is getting stronger. But he is frustrated.

As I said at the beginning of this post, we are on a roller coaster. He’s up, he’s down…we’re thrown for another loop…and never coming to rest.

Where’s the joy? Another tough day of uncertainty sprinkled with hope.

I am thankful for my family. My kids spent the day with Norm so I could have some regrouping time.

I pray for Norm, that he will regain physical stamina, spiritual wisdom, and emotional stability.

I rejoice that God continues to hold Norm in his hand, regardless of the difficulty and lack of knowledge.

Where’s the joy? God remains faithful, even when I do not.

Remember my affliction and my wanderings, the wormwood and the gall! My soul continually remembers it and is bowed down within me.

But this I call to mind, and therefore I have hope: The steadfast love of the Lord never ceases; His mercies never come to an end; they are new every morning; great is Your faithfulness.

“The Lord is my portion,” says my soul, “therefore I will hope in Him.”

The Lord is good to those who wait for him, to the soul who seeks Him. It is good that one should wait quietly for the salvation of the Lord. Lamentations 3:19-26

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Where’s the Joy?

Posted on February 12, 2025 by tricialathrop

February 9

The last two days have been awful. Saturday night, Jenn and I returned to the house to get some rest before returning to the hospital the next morning. I got a text from Norm complaining about the staff, said he was refusing to do what they asked until he talked to a doctor. He thought his symptoms required a visit to ICU and how could these so called professionals not see it.

His mind is under attack by an unknown illness. He has no control over the anger, and when he gets an idea in his head, he will not be dissuaded. The last week he’s been yelling at me, but now he was yelling at the nurses.

I know and the nurses know that this is the disease speaking. One of the nurses commented on his prior behavior on the floor, they knew this was not the way my husband would react. The nurses are used to dealing with cancer patients who are in life changing situations. Sometimes the cancer does a number on the brain, sometimes the treatment can cause the emotional shifts, sometimes an infection will invade an already compromised body and wreak havoc.

Jenn, who has a way with talking to upset people, calmed him down. She helped restore him to some rationality, but he was still angry, even though he felt as if someone heard.

This has been tough on Norm. There is fear of losing control. Norm never used drugs or drank alcohol because he wanted his mind and emotions in tact, he did not want to lose control. Yet, here he is…hearing himself be hateful, but unable to stop.

Nine months ago he was hiking 10-12 miles per hike. When this started, there was a fear he would never hike again.

Out west, he enjoyed driving us in an OHV all over the San Juan Mountains. It was scary at times and required skill and full awareness.

In August we spent a week watching the grands, going to the park, playing, enjoying one another’s company. They love playing with their Poppop, who throws himself totally into their games. Due to the illness, we have not seen them since, except on FaceTime.

Norm loves to do woodworking, his Covid hobby. He is in the process of building a bed for his grandson Sawyer. Partially finished, it sits in the garage.

He had plans to go to Yellowstone for two weeks to look for wolves to photograph. We had plans to go to the Northeast and revisit some of our favorite places when the leaves were in their autumn peak. We had plans to take the Viking River Cruise from Amsterdam to Budapest in the spring.

We’ve made some plans to celebrate his survival. A Disney cruise in April, a trip to Yellowstone with some family and friends in the fall, and another trip to visit the cathedrals in France. All on hold at the moment, but not cancelled.

Wherever we go, and on Norm’s hiking trips, he takes award winning photographs…he took second place in the National Parks photo contest. He has been to all the National Parks in the continental US, as well as some in Alaska and all in Hawaii. He had planned a trip to Alaska in 2025 to get the remaining parks there…not happening this year. If he recovers, maybe next year.

His favorite things, family…especially the grands Sierra and Sawyer, debating with his friends, hiking, photography, word working, and having deep thoughts…all are suffering because of the cancer and now diminished because of whatever is happening in his brain.

One day while I held his hand, he had a thought. All that made his life worthwhile had been stripped away except love. God loves him. I love him. His family loves him. His friends love him. People he has never met show their love by praying for his healing.

He decided at that time, love was enough.

Where’s the joy?

I am thankful that Norm knows he is loved. He’s a little fuzzy on that, but he sees his family staying by his side and knows that people are praying.

I pray for those living without the knowledge of love, especially the love that God has for them. God loves each one so much that he sent Jesus Christ to die on the cross in payment of their sin so that they could come to know God as a loving Father.

I rejoice that we continue to hope in spite of the circumstances.

Where’s the joy? The joy is in the assurance of God’s love in our lives. No matter what we have done, He loves us. No matter how far we run away from him, He loves us. No matter what we see happening around us, God loves us with a love that is deeper and purer than anyone on earth can give.

For God so loved the world, that he gave his only Son, that whoever believes in him should not perish but have eternal life. For God did not send his Son into the world to condemn the world, but in order that the world might be saved through him. Whoever believes in him is not condemned, but whoever does not believe is condemned already, because he has not believed in the name of the only Son of God. John 3:16-18

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Where’s the Joy?

Posted on February 11, 2025 by tricialathrop

February 8

Still at the hospital. No answers.

My oldest daughter is here with me. My children have been great about coming in for Norm’s treatments. This weekend, he is here for an as yet unknown infection. Chemo is not happening, we are waiting to see when it can resume.

Meanwhile, we wait. Norm seems to be improving physically, not so much mentally. He’s not hearing voices, but definitely a misperception of reality. For instance, today he is positive he has bird flu from his visit to Asia 20 years ago, and doesn’t understand why the doctors don’t test for it.

It’s tough to watch him suffer and be able to offer no consolation. Nothing works, he’s just in a miserable place.

We pray. We wait. We pray while we wait. Others also pray while we wait.

It all comes back to trust. I trust God to do the best for him. I hope God will totally heal him. I know God will do/allow what is best for him.

Now faith is the assurance of things hoped for, the conviction of things not seen. For by it the people of old received their commendation. Hebrews 11:1

Where’s the joy?

I am thankful for my children who are here for Norm and me without complaint, helping us to navigate this path.

I pray for wisdom and strength for the people who care for Norm in the hospital and in the outpatient center.

I rejoice in the Heavenly Father who is unseen and yet sees all.

Where’s the joy? Standing on the promises that God has made to us through Jesus Christ the Lord.

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Where’s the Joy?

Posted on February 8, 2025 by tricialathrop

So yesterday, Norm began the day walking with a cane, by noon he needed a walker…and that was unsteady. At 3, he began to run a 103 degree fever. I had to have help getting him into a wheelchair to get him to the hospital. Thank you Mike.

With the emergency department completely full and Norm immune compromised, we were able to get him into a processing room. They did a lot of tests and took some blood cultures to figure out what is going on.

Most troubling is the attitude change, back to the anger…not only at me but at all the nurses trying to take care of him. I was so happy when the chemo seemed to be working to have my husband back, with a great sense of humor…this man with this sickness…he’s just angry.

Now, we are in the cancer ward. While we don’t know the cause of the fever, all the contagious possibilities have been ruled out. No covid, no RSV, no flu.

Still angry. I can’t imagine the thoughts going through his mind. He has to be confused, everything was going well and now he cannot take care of himself. He can’t even sit up by himself, let alone walk.

I try to give him the grace he needs in order for him to vent his frustration, but there comes a point where I need to step away and regroup.

I have to ask myself, how would I behave in a similar situation? I’m not sure. The anger seems to be related to the cancer…so he can’t help that.

I know of a woman who could not live with her husband because he threatened her life, he could live with his son, but she was in danger. I can’t imagine.

Where’s the joy?

I am thankful we live near a leading edge health care facility, UT staff have been great.

I pray that the Lord will continue to give me grace to extend to Norm as he fights this awful disease.

I rejoice that we have been able to get Norm in to someone who can give him the help he needs.

Where’s the joy? Though the road is hard and has a lot of bumps, God continues to provide for all our needs.

Rejoice in the Lord always; again I will say rejoice.

Let your reasonableness be known to everyone. The Lord is at hand; do not be anxious about anything, but in everything by prayer and supplication with thanksgiving let your requests be made known to God.

And the peace of god, which surpasses all understanding, will guard your hearts and your minds in Christ Jesus.

Finally, brothers, whatever is true, whatever is honorable, whatever is just, whatever is pure, whatever is lovely, whatever is commendable, if there is any excellence, if there is anything worthy of praise, think about these things.

Philippians 4:4-8

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Where’s the Joy?

Posted on February 6, 2025 by tricialathrop

February 5

Our visit to the oncologist did not go as expected. In the last seven days I’ve watched my husband’s progress in this journey fade away. His appetite, his strength, his freedom from pain, his forward thinking all gone.

Our plans for a cruise in April and Yellowstone with friends in September, all on hold while we wait to see what the new scans tell us about his condition. How does one hope for a brighter future yet prepare for the worst case scenario?

We will wait for the results, an uncertain future. We are moved to the front of the line as far as getting scans, they will be done within the week. Meanwhile, the scheduled chemo treatments will continue.

Again, not the path we would have chosen. We have seen time after time when the Lord intervened in the eleventh hour, preserving his life. I cry. I pray. I do what I can to make him comfortable while we wait for answers.

Where’s the joy? Tough question today.

I am thankful for every day I have with Norm. We have had some great times.

I pray for Norm’s healing, God can intervene again. But if God chooses to take Norm home to be with Him, then I pray for strength to continue and be the support Norm will need.

I rejoice that whatever comes our way, we are loved by the Lord God Almighty.

Where’s the joy? If the cancer has returned, God gave me a few extra months with the man I love.

Beloved, let us love one another, for love is from God; and everyone who loves is born of God and knows God. The one who does not love does not know God, for God is love.

By this the love of God was manifested in us, that God has sent His only begotten Son into the world so that we might live through Him.

In this is love, not that we loved God, but that He loved us and sent His Son to be the propitiation for our sins.

Beloved, if God so loved us, we also ought to love one another. John 4:7-11

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Where’s the Joy?

Posted on February 4, 2025 by tricialathrop

February 3

Another day of uncertainty. Norm will go to the doctor tomorrow so that they can evaluate how best to help him through this struggle. I’m hoping he just needs some fluid or hemoglobin, to help him with the chemo treatments.

Today, I had a flat tire, I picked up a nail when I ran over some debris. Norm usually takes care of issues with the car. He did remind me not to drive on the flat…so I called AAA. Then he told me where he takes the cars for tire issues…Matlock’s in Maryville. Nice people, fixed my problem without charging me.

It took me back to the first days of the chemo diagnosis, when it looked like Norm wasn’t going to live.

Even in all the uncertainty, I have hope. This could all be just a minor set back, though it looks more serious. Extra fluids tomorrow could give him the energy he needs to continue with strength on the road to recovery. I don’t know what’s coming, but God does.

Christians often quote Jeremiah 29:11. “For I know the plans that I have for you,’ declares the Lord, ‘plans for welfare and not for calamity to give you a future and a hope.” Sounds great, I’ll take that promise. But it comes before their exile to Babylon for 70 years.

God’s plan for good sometimes comes through suffering. I don’t know God’s plans for our future, but He knows and I can trust Him to have a plan for our good and not calamity.

Where’s the Joy?

I am thankful that God cares for each one of us and has a plan specific to each one of us.

I pray that as Norm and I walk this journey God has chosen, that we will be able to encourage and bless others along the way.

I rejoice in God my Savior. He who is mighty has done great things. Blessed be the name of the Lord.

Where’s the joy? “Do not be grieved, for the joy of the Lord is your strength.” Nehemiah 8:10

The Lord is my shepherd, I shall not want.

He makes me lie down in green pastures;

He leads me beside quiet waters.

He restores my soul;

He guides me in the paths of righteousness

For His name’s sake.

Even though I walk through the valley of the shadow of death,

I fear no evil, for You are with me;

Your rod and Your staff, they comfort me.

You prepare a table before me in the presence of my enemies;

You have anointed my head with oil;

My cup overflows.

Surely goodness and lovingkindness will follow me all the days of my life,

And I will dwell in the house of the Lord forever.

Psalm 23

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Where’s the Joy?

Posted on February 3, 2025 by tricialathrop

February 2

What do you do when you are at the end of your rope…and that rope is totally frayed?

Yesterday, I wanted to just walk away from the struggle and not come back for an overnight…a 24 hour breather. Find a hotel with a great view, and just regroup. I’m overwhelmed…but only 3 more treatments to go.

I know it’s worse for Norm, he has cancer. As the caregiver, this is not easy. It takes its toll physically and emotionally.

Norm seems to have returned to some of the pre-treatment symptoms. He’s not eating as much, sleeping more, getting angry more…but that could be the steroids or the meds, he’s on some pretty powerful stuff that has to be interfering with everything.

We got good reports from the doctors, but this day to day is draining. I’m dealing with a fear that this is the new normal. I don’t know what’s ahead, and this is probably just an irrational fear that rears its ugly head and messes with me psychologically.

Talking with my adult kids about this, we concluded that we are at mile 20 of the marathon…where both my girls always hit the marathon wall. We only have a quarter of the treatments to go, the finish line is in sight. We have hope that his cancer will be cured and this nightmare will be over.

As I have what I call my patti pity party, I’m reminded that we are in a good place. Norm’s treatment is working. Others have walked this road, with no hope of a cure, having chemo to keep the pain at bay while they pass. Some have not even got to have treatments, the cancer being found too late. There are some who walk this road alone. I am truly blessed with family and friends who walk alongside.

This morning I lay in bed and did a lot of crying. I didn’t want to face the day. A song came to mind from Disney’s Frozen 2. Anna had lost Elsa, Olaf and had discovered that her grandfather had deceived and cheated a group of people. As she struggled with the loss, she sang, “Do the Next Right Thing.”

Where’s the joy? Giving up is not an option. I will face today, tomorrow and the days following with the grace that God provides. I will endeavor to deal with Norm, knowing that God is the One who determines the outcome and gives strength to make it day by day.

I am thankful that we have hope in a cure and restoration of health for Norm.

I pray for those who are walking with no hope, that they will be given the strength and courage to persevere. And that amidst their struggle, they will be able to find peace and joy that God provides.

I rejoice that God has this, no matter what comes our way.

Consider it all joy, my brethren, when you encounter various trials, knowing that the testing of your faith produces endurance. And let endurance have its perfect result, so that you may be perfect and complete, lacking nothing.

But if any of you lacks wisdom, let him ask of God, who gives to all generously and without reproach, and it will be given him. James 1:2-5

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