Author Archives: tricialathrop

Where’s the Joy?

Posted on March 5, 2025 by tricialathrop

March 4

I came in with such hope today–he almost succeeded in getting the tube out. All was fine. Physical Therapy gave him a positive workout. Aimee came in. All was set for breathing trial #5, then he spiked his BP and they cancelled the trial.

Since then, he’s been very sleepy. he looks a lot to the right corner of the room, nothing there. He says it is a focal point. His responses are slower. He gets frustrated when we don’t understand.

The dilemma, I want him whole and healthy and still with me, however I am watching him grow weaker and less responsive.

After having nothing come up in his lungs for 2 1/2 weeks, he’s bringing up something from his lungs. He is constantly needing suction. They’ve got him so sedated, he doesn’t stay awake for long.

Once again, he has an awesome nurse.

Where’s the joy?

I am thankful for the excellent care he gets here.

I pray that God will relieve this coughing so he can rest well for another try tomorrow.

I rejoice that God gives me peace beyond all understanding.

Yet those who wait for the Lord will gain new strength; they will mount up with wings like eagles, they will run and not get tired, they will walk and not become weary. Isaiah 40:31

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Where’s the Joy?

Posted on March 4, 2025 by tricialathrop

March 3

Norm didn’t want me to leave when they did the new breathing trial. Today was the fourth attempt. The ones he had done earlier really spooked me. But, I stayed, holding his hand as he endured the fear and the pain of the reduced meds and oxygen. He did better, but they still could not get the tube out.

Palliative care spoke to me. The question, what if they can’t get the tube out? What if they get the tube out and he has to have the tube reinserted? Having the doctor ask me those questions with Norm in such a vulnerable state made his possible death more real. I was already questioning whether he would be able to survive this still unknown infection. The music therapist and chaplain came by, I had a very weepy day, I cried a lot.

The ventilator is used to keep someone alive while they discover what is wrong or while the medicines heal the body. They have pretty well done all they can for Norm, still unknown cause and they have used every antibiotic and anti fungal to attack any known agent. Each one seemed to work…a little, but not to knock out whatever this is. There is still some hope that the sample sent to Washington will come up with an answer…hopefully this week.

I need to talk to the kids about options. If they are able to get the tube out, then Norm will be able to tell the doctors whether he wants CPR and a reinsertion of the tube. If he is unable to make the decision, then it falls to me.

He’s swollen from this initial insertion, another would cause more issues. CPR may cause more damage in his weakened state. He’s been near death a few times in the past five months, and has rallied to the point that he seemed well on his way to recovery.

Will he rally this time? I don’t know what God will do. I live in a state of limbo, not knowing.

I’m sure Norm is there too. If he could speak, maybe he would say more. Fears and uncertainty cloud his future. He was awake all day today, and had time to consider it. I sat by his side, holding his hand, watching him struggle and thankful for meds that gave him some comfort.

He tried to communicate, I did understand some things. A matter of guessing and having him nod or shake his head. I’m usually decent at guessing charades…not so much acting it out…but not today.

Where’s the joy?

I am thankful for each person who has poured into Norm’s life during this hospital stay. They seem to really care, and don’t treat him as just a client.

I pray for God’s best for Norm, and strength to walk whatever comes our way with grace.

I rejoice that God is in control.

Let the glory of the Lord endure forever; Let the Lord be glad in His works; He looks at the earth and it trembles; He touches the mountains and they smoke.

I will sing to the Lord as long as I live; I will sing praise to my God while I have my being, Let my meditations be pleasing to Him; As for me, I shall be glad in the Lord.

Bless the Lord, oh my soul. Praise the Lord!

Psalm 104:31-35

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Where’s the Joy?

Posted on March 3, 2025 by tricialathrop

March 1

Today–emotional overload. I’ve reached my limit.

They did the preliminaries to take Norm off the ventilator, which means they reduce the sedation, giving him an opportunity to breathe on his own and making him aware of his surroundings.

He writhed against the restraints. His eyes bulged in fear as he looked at me, begging for me to help, no words, but in feeble sounds. That episode is seared onto my brain.

I stood helplessly as his O2 level dropped to far and it seemed he would go into cardiac arrest. They sedated him again to try later.

I can’t do this again. I cried because of his pain and fear. I cried because I am not strong enough to stay with him through this trial.

They kept him quiet the rest of the day and will try again tomorrow.

Where’s the joy?

I am thankful that the nurses and doctors know how far to push before calling it quits, allowing his body to rest for another try.

I pray for strength to be with Norm, in prayer if not physically present.

I rejoice that there is still hope.

The Lord is my shepherd, I shall not want.

He makes me lie down in green pastures; He leads me beside quiet waters.

He restores my soul; He guides me in paths of righteousness for His name’s sake.

Even though I walk through the valley of the shadow of death, I fear no evil, for You are with me; Your rod and Your staff, they comfort me.

You prepare a table before me in the presence of my enemies; You have anointed my head with oil; My cup overflows.

Surely goodness and lovingkindness will follow me all the days of my life, and I will dwell in the house of the Lord forever.

Psalm 23

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Where’s the Joy?

Posted on March 1, 2025 by tricialathrop

February 28

Today was to be Norm’s last chemo treatment, but here we are in the ICU, intubated. Disappointing that we were so close. He seems to get better then crashes. Do close and yet so far.

He has a breathing tube, a feeding tube and all kinds of IVs with antibiotics and antifungals as well as an artery monitor to keep closer tabs on BP and oxygen levels. His neck is swollen and he continues to sleep, I’m hoping he has pleasant dreams. His oxygen levels continue to fluctuate.

This is painful to watch. I’ve played his music all day, hoping to give him some encouragement in music. I talk to him, just in case he can hear me and knows he is loved.

They did another bronchial analysis, hoping for answers. I don’t know what they might find that they haven’t before.

The way I see it, the only way he is pulling through is if the Lord reaches down another time and heals his body. Of real concern, his lungs, we don’t know how much they have been damaged, if at all.

If he lives through this, will he be able to hike again? Will he be willing to go to scenic overlooks and be in a wheelchair to get some photographs? Will he be able to continue with woodworking, and finish Sawyer’s bed? Will he be able to continue with his chemotherapy and be fully healed head to toe?

I’m still just walking each day, one step in front of the other, doing what needs to be done and trying to get the rest I need so I can continue each day.

I don’t know what each day will bring, but God does. I know He wants God’s best for Norm.

Where’s the joy?

I am thankful for the staff that is taking such good care of Norm with a good attitude.

I pray for the Lord to do what is best for Norm, a miracle healing is my preference, BUT only God knows what is truly best.

I rejoice that…to be honest, I’m not rejoicing. BUT I know that God remains faithful and He is at work in Norm’s life and in mine.

Now to the King eternal, immortal, invisible, the only God, be honor and glory forever and ever. Amen. 1 Timothy 1:17

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Where’s the Joy?

Posted on February 28, 2025 by tricialathrop

February 27

When I left Norm at the hospital last night he was joking with the nurses and doctors. He still had some trouble breathing, but seemed to be on the mend.

A phone call this am had Rob and I trying to get to the hospital quickly. Tons of equipment sat outside his room. I entered the room, my eyes on Norm, restrained and struggling with the tube down his throat.

He opened his eyes, will and frightened. I tried to reassure him. Tears ran down his cheeks. I told him I loved him, and I would be with him. They gave him more sedative and he slept.

ICU again…this one is more pleasant for the family. More room, a comfortable couch where I will sleep.

I will say this about the staff at University of Tennessee Medical Center, they have been awesome. This is our fifth crew of this hospital visit and they have all given Norm excellent tender care.

I’ve been telling the nurses about his hiking and photography adventures, since he cannot share. It’s hard to watch him be like this.

Still no answers. More tests to come. He’s resting comfortably, probably the best sleep he’s had in six months.

Where’s the joy? Actually, lots of tears today.

I am thankful for the considerate, tender care of the staff at UT.

I pray that the Lord intervenes and heals Norm completely, another eleventh hour miracle would be great.

I rejoice that the Lord God of the universe has a plan for Norm. I will trust Him.

O God, you are my God; earnestly I seek you; my soul thirsts for you; my flesh faints for you, as in a dry and weary land where there is no water. So I have looked upon you in the sanctuary, beholding your power and glory.

Because your steadfast love is better than life, my lips will praise you. So I will bless you as long as I live; in your name I lift up my hands. Psalm 63:1-4

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Where’s the Joy?

Posted on February 27, 2025 by tricialathrop

February 26

Here we go again!

Today, Norm’s oxygen numbers dropped very low and they had a hard time getting him to stabilize. So another early trip to the hospital, afraid of what I would find.

But what started off really terrible, it ended up being the best day he’s had in weeks. They addressed those things that caused him stress. The music therapy lady came to visit. A good friend of his came to visit. He ate better than he has in days.

When I left, he was happy, joking and making the best of still being in the hospital.

I realized something today. I’ve been pushing through each day, doing what needed to be done…step after step. It is the prayers and support of the people in my life who have kept me going…doing for me what I cannot do for myself as I focus on Norm and his health. I am truly blessed.

Where’s the joy?

I am thankful for the prayers and emotional support of those around me.

I pray for the ability to be a blessing to those with whom I come in contact throughout this struggle.

I rejoice that God has placed people in my life who are supporting me and lifting Norm and I continually in prayer.

Where’s the joy? Friends and family walking alongside. How sad it would be to walk this road alone.

Two are better than one, because they have a good reward for their toil. For if they fall, one will lift up his fellow. But woe to him who is alone when he falls and has not another to lift him up!

Again if two lie together, they keep warm, but how can one keep warm alone?

And though a man might prevail against one who is alone, two will withstand him–a threefold cord is not quickly broken. Ecclesiastes 4:9-12

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Where’s the Joy?

Posted on February 27, 2025 by tricialathrop

February 25

I came today expecting an easy day. The pain meds worked yesterday…

On the 23rd they moved Norm out of ICU to the PCU…one step away from ICU, still a lot of monitoring, but not as intensive as the ICU. Here I have a somewhat comfortable chair, at least it reclines. There’s a little more space for personal items.

The move was a bit of an adjustment, but Norm got comfortable as he could. Improved, but a long way to go.

Yesterday, I got a text from Norm at 4:30 with three crying emojis. I hurried to get ready and went to the hospital. I found him in a lot of pain and very fearful. He kept saying he wanted the Lord to go ahead and take him so he could walk in the garden with God…his means of trying to cope with the pain he was experiencing.

The nurse asked if I had considered end of life comfort care…and yes with all the ups and downs that is something that comes to mind. But at this point, all the evidence says that all the treatments are working…so at this time, no, hospice not an option.

A new hospitalist (new floor) came in and made some comment that set Norm off. He thought this doctor had not read beyond the prior 12 hours and had no idea of his history.

So, for the rest of the day we had all kinds of doctors coming in. The most effective was Dr Jackson with palliative care…my sister emphasizes, not the end of life palliative care. She realized that what he needed was pain management to give his lungs time to heal.

They did some pain management and the rest of the day was great.

Back to today, I had plans for lunch with friends, a much needed break…but the pain management did not go far enough and Norm had severe pain that was not being addressed. He lashed out at everyone and I tried to comfort him…hard to do when someone is in intense pain.

So a readjustment and Norm settled down. He apologized to all he had yelled at. The ones who have been there awhile understood pain anger, but the poor new nurse…it kind of shook her, but she gained some experience and insight as she watched the older nurses handle Norm with kindness and firmness.

Another roller coaster day…I’m feeling stretched to the limit.

Where’s the joy?

I am thankful that the people are caring for Norm and giving him a good chance to recover.

I pray for the support staff who work in the background making sure the nurses and doctors have the freedom to work with the patients in a clean and safe environment.

I rejoice that God remains faithful.

For God alone, O my soul, wait in silence, for my hope is from him. He only is my rock and my salvation, my fortress; I shall not be shaken. On God rests my salvation and my glory; my mighty rock, my refuge is God. Trust in him at all time, O people; pour out your heart before him; God is a refuge for us. Psalm 62:5-8

Where’s the joy? It’s in the faithful people helping others to get better when they are critically ill.

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Where’s the Joy?

Posted on February 23, 2025 by tricialathrop

February 21

I’m getting mixed messages. Oncologist and infectious disease doctors see improvement–ICU and Respiratory doctors see the need for oxygen increasing. I see him struggling to breath and constantly talking about him dying in the hospital.

He can’t leave ICU until his need for oxygen reduces. If he were to go on hospice, he can’t go home until there is a significant drop in the amount of oxygen he needs.

He seems more like his old self most of the day, but he still gets very angry and frustrated at all that is going on around him. He no longer asks to go home, he’s resigned to hospital life for now…doesn’t like it but is enduring it.

Everyone is flummoxed. He’s not responding in any expected way.

What is God going to do? Heal him and have him continue on earth with quite a testimony? Or take him to walk with Him in the heavenly garden.

Though the fig tree should not blossom, nor fruit be on the vines, the produce of the olive fail and the fields yield no food, the flock be cut off from the fold and there be no herd in the stalls, yet I will rejoice in the Lord; I will take joy in the God of my salvation. Habakkuk 3:17-18

I don’t know, yet I will trust in the Lord.

Where’s the joy?

I am thankful that Norm is getting great care.

I pray for his heart to be encouraged.

I rejoice that though I watch everything falling apart, I can take joy in the God of my salvation.

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Where’s the Joy?

Posted on February 20, 2025 by tricialathrop

February 20

Before I begin what I wrote earlier this morning, I want you to know that things look better for Norm today. I’m going ahead to share this because I think that as a caregiver, we all reach a point of frustration where we feel that it may never get better.

When does one call it quits? Ten days ago I took Norm to the hospital with a 103 degree fever and a decreasing ability to walk. He was doing so well on chemo, it was a fast fall from doing well to being on his deathbed.

Yesterday, the doctors think they have found the cause and have a treatment…after 10 days of this is possibly it and treatments not working, I’m a bit skeptical. 10 days of hope, followed by that wasn’t it and hopes dashed. I’m weary of the roller coaster of emotions.

Norm’s pain has increased, it was a 6, now he’s saying it’s an 8. They are giving him pain meds every few hours and he is counting the minutes until he can get a new med.

When I left yesterday, I planned to speak to the nurses about the tube. Would it decrease his anxiety and agitation since he would be sedated to use the tube? Would it allow him to rest? Would it help with the pain while the new meds do their job on the fungal pneumonia?

But then, am I really thinking more about him or about me? I’m tired.

I’m tired of seeing him in such pain and not able to do anything for him.

I’m tired of him griping at me when I don’t have the food, drink or other item that he must have right now.

I’m tired of the daily drive to the hospital where I sit in an uncomfortable chair waiting for him to demand something from me.

I’m frustrated that I cannot do what I want to do.

Everyone says take care of yourself. But when someone you love is suffering and dying, one can’t take care of oneself…you just can’t.

What is best for Norm? His brother and sister said that after I left, they were able to have some good conversation and he seemed to improve. He definitely does better with others in the room.

Last night I got a text from Norm saying that the oxygen device fell off and he felt like he was suffocating. It was scary for him. The nurse was trying to get it back on, but he was agitated and she kept telling him to calm down, tough to do when you can’t breath.

At this point I have to trust the doctors and nurses to know when he needs to have the tube. They’ve dealt with people in need before, they know what to do and when it needs to happen.

If the new meds don’t work, then we revisit the giving of comfort care. I will take him home until he goes to his permanent home to walk with the God in the heavenly garden.

Blessed is the one whose transgression is forgiven, whose sin is covered.

Blessed is the man against whom the Lord counts no iniquity, and in whose spirit there is no deceit.

For when I kept silent, my bones wasted away through my groaning all day long.

For day and night your hand was heavy upon me; my strength was dried up as by the heat of summer. Selah

I acknowledged my sin to you, and I did not cover my iniquity; I said, “I will confess my transgressions to the Lord,” and you forgave the iniquity of my sin. Selah.

Therefore let everyone who is godly offer prayer to you at a time when you may be found; surely in the rush of great waters, they shall not reach him.

You are a hiding place for me; you preserve me from trouble; you surround me with shouts of deliverance. Selah

I will instruct you and teach you in the way you should go; I will counsel you with my eye upon you.

Be not like a horse or a mule, without understanding, which must be curbed with bit and bridle, or it will not stay near you.

Many are the sorrows of the wicked, but steadfast love surrounds the one who trusts in the Lord.

Be glad in the Lord, and rejoice, O righteous, and shout for joy, all you upright in heart! Psalm 32

Where’s the Joy?

I am thankful Norm is in a facility that gives him the best chance for not only survival, but also restoration to a good quality of life.

I pray for wisdom to make right choices, courage to face the uncertain future, strength to endure and hope that rests in the Lord God Almighty alone.

I rejoice that Norm knows the saving grace of Jesus Christ and that his future is secure in Christ.

Where’s the joy? My joy rests in the Lord.

For God alone, O my soul, wait in silence, for my hope is from him. He only is my rock and my salvation, my fortress; I shall not be shaken.

On God rests my salvation and my glory; my mighty rock, my refuge is God.

Trust in him at all times, O people; pour out your heart before him; God is a refuge for us. Psalm 62:5-8

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Where’s the Joy?

Posted on February 19, 2025 by tricialathrop

February 18

It’s been a rough few days. Norm continues to ride the roller coaster between going to die and going to live.

My plan was to take him home yesterday. Dr Cutrer said that it would be morally and medically unethical to send him home. BP still iffy, but his oxygen levels had dropped so much that there was no way to give him the oxygen he needed. And still, we wait for answers.

The question is what really is the cause…there are all kinds of fungus. Cultures still growing.

Norm’s brother and sister came, they helped to bolster his spirit, I think the pain meds helped to return Norm to his wisecracking self.I heard Norm laugh multiple times, and he was nice to the nurses.

I’ve decided to tell Norm that he is free to stop the fight. If he wants to live, which is what I want, he needs to do it for himself, not so that he’s not a disappointment. I don’t know if he heard me, but he is my hero….very supportive and encouraging for all my endeavors.

This writing was interrupted. Norm came back from his MRI, in pain (not from the MRI), and agitated. He kept saying over and over, “Oh Lord, you are my God, and I will ever praise you.”

He was in a lot of pain, his oxygen and BP levels were sinking. The nurses put a mask on him and told him to continue the chant, just in his head because talking caused his oxygen level to reduce.

I sang the song to him as he tried to focus on breathing. Song after song, but the oxygen level stayed too low. The nurses looked very concerned.

Suddenly about ten people entered the room, in a rush and began to work with Norm. Dr Cutrer took us out into the hall and asked us what had happened. Then he spoke to one of the nurses. Norm would need to go to ICU and possibly get a breathing tube.

I spoke to Norm about the tube, he was concerned that it would be the rest of his life. I assured him only a few days, giving the doctors a few more days to find the treatment that would get rid of the fevers, and allow him to continue his cancer treatment.

They rushed him to ICU, where he got agitated again, he was confused and I wasn’t allowed in the room while they got him hooked up to monitors and a breathing apparatus…not an intubation.

They got him to be stable…but we still don’t know what is going to happen. It’s scary. Will he recover? Will we have another miracle? Or will he continue to decline? Here we are again, waiting to see what happens, waiting to know if there are any answers to his illness, waiting for whatever the Lord will do.

Where’s the joy? Another day when it is not so clear.

I am thankful for the care and concern shown by the nurses and doctors at each step of this journey.

I pray for a friend who is dealing with pneumonia, and had to be transferred to a hospital where she may have an operation.

I rejoice that God remains faithful, even when it seems he is not there.

The steadfast love of the Lord never ceases, his mercies never come to an end; they are new every morning; great is your faithfulness. Lamentations 3:22-23

I tried to load the song from Michael W Smith, “Step by Step”. Perhaps you can find it on YouTube.

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