October 4
This has been a tough week. As I pondered the cause, I realized that this was the time when it all came to a head. Norm had lesions and they said a liver biopsy was necessary.
I quit all my involvement in Bible study, choir, writing group…everything came to a halt as I did what I could to care for and encourage Norm. Everyday he seemed weaker, I felt like I was watching him die in slow motion. But it would be another month before we had an actual diagnosis.
I began to reach out to friends and family, letting them know what was happening and the prayers began to be lifted for Norm…all over the world. He was overwhelmed by the support he received, humbled by the care, even of people he did not know.
Should you find yourself or a loved one facing an unknown diagnosis that could be serious, I have a few suggestions.
- When you go to the doctor or specialist, have three sets of ears listening, even if one is on speaker phone. My sister suggested that and it was a great help. We would discuss what we heard and with three of us, we remembered more. My kids took great notes and made sure to share them with the ones who did not attend. if one of the three can be a medical person, even better.
- Ask questions. Clarify what you heard, repeat it back. If you don’t know what to ask, then say, “I don’t even know what to ask.” A good doctor will answer the common questions.
- If something is not happening as you had understood it, speak up. When we went in for the liver biopsy, the nurse told us they were doing a non-focal liver biopsy. We asked for clarification, they were taking a general sample from the liver, not the lesions. Fortunately, my sister knew the ropes and made the calls that got the biopsy stopped until the orders could be clarified. Too many people don’t speak up thinking they must have heard wrong, after all the doctor should know, right? Mistakes are made, if it doesn’t sound or look right, speak up.
- When the cancer diagnosis came, we were given a patient advocate. If that is provided for you, they are a great source of information, they know the ropes for scheduling tests and appointments. Use them.
I’m returning to those things in which I was involved. It’s tough, but I am trying to move forward and people are very supportive.
I am thankful for the family and friends who supported me and Norm during this time of trial and stress. We would not have made it without them.
I pray for wisdom and courage for the days ahead, I sometimes feel as if I’m still on the roller coaster, but God remains faithful.
I rejoice that God is my rock and my salvation. He will be with me in the good and in the bad.
Where’s the joy? It’s in the hope provided by Jesus Christ.
O God, You are my God; I shall seek You earnestly; My soul thirsts for You, my flesh yearns for You, in a dry and weary land where there is no water.
Thus I have seen You in the sanctuary, to see Your power and Your glory. Because Your lovingkindness is better than life, my lips will praise You.
So I will bless You as long as I live; I will lift up my hands in Your name. My soul is satisfied as with marrow and fatness, and my mouth offers praises with joyful lips.
When I remember You on my bed, I meditate on You in the night watches, for You have been my help, and in the shadow of Your wings I sing for joy.
Psalm 63:1-7